I really believe our oldest daughter Michaiah is functioning so well and at school in her daily life because of the encouragement and the fostering of her development. Michaiah is receiving both speech and occupational therapy at the school. Though she is in a contained class, she still has general education curriculum along with sensory breaks and opportunities to use coping mechanisms that will allow her to better regulate her behavior. Michaiah must learn how to cope and self soothe if and when she were to ever integrate to a general education classroom. Though she does do this for the most part, it is not yet fully consistent at this time.
We also notice as parents, just like any other child, she is her own little person. A diagnosis or educational classification in this case, does not define who she is. She still has her likes and dislikes just like you or me. We do notice she is more motivated to work at something when it is a particular topic of interest. In her case, she is extremely motivated by both math and science! She also really enjoys art! We work on cultivating her gifts as parents. There are no limits that we place on her. We look to the potential of her overall full development, yet love on her where she is at. No matter how long it takes or the effort, the more we stick by Michaiah as parents, the more we see her desiring to learn and grow! Boy does she ever ask a TON of questions; especially lately! Everything is ‘why’ these days! Though it drives us crazy as parents, we are grateful she can even have conversation. Can you imagine how frustrating it would be for her not to verbally be in a position to communicate with us? It was not long ago that she had an extremely limited vocabulary! Having in-home therapy and advocating for her classroom program at school has made all the difference! Yes there are so many meetings and meetings for meetings. It can be draining, but when you see your child getting proper support and help in a way that you can truly see effective change like we have, it sure makes our hearts sing! We are overjoyed at all the progress she has made in the last few years of her little life!
We don’t know what the future holds as of yet. We were able to go through our local community health for an actual medical diagnosis. Had we not done this, we would be on quite a waiting list. Michaiah also has an acting neurologist who checks in on her and will be evaluated for genetic testing here in the month of March 2018. We will for sure keep you posted. Us parents sure are looking forward to some answers that only certain blood tests will ever reveal. It’s been a bit of a battle with the insurance approving it, but each step we take, we are getting closer to an answer. Knowing we may have some answers soon makes the fight worth it all. As parents, we know and have come to expect that this is a day by day journey. We do know one thing, our love for one another and the hope that each of us shares together. We did not ask for this, we did not expect this as parents that we would ever be faced with some of the decisions and choices we have had to make it. I can honestly say as a mother, there isn’t any regret that either of us have as her parents. We embrace it, all of it, the challenges, the tantrums, the laughter, the silliness, and the love! Both of our girls were the best thing that ever happened!!! Now lets get this journey started!!! <3
It was important for us parents to not lose sight, not lose her as number amongst other students. As a matter of fact, her father and I have continued to work diligently in advocating for the best possible care for her and her education according to her individualized education plan (IEP). This would ensure her care from down time, to alone time, sensory breaks, additional supports and assistance with transitions in and outside of the classroom as well as ensuring her safety.
We have always believed as parents that the sky is the limit for her. Not only is she not defined by ASD, but she has come so far! I remember when Michaiah was limited in the words she could speak and how she could express herself. She was great when things went her way or if it was something she wanted to play with, but it always had to be her idea. As soon as a new toy was introduced or play was interrupted, that could not be such a great thing. Big spaces and loud noise would also adversely effect her negatively. Michaiah would want to escape and calm herself. She has always been more than capable academically and is very smart and bright! Her classroom is designed to instruct her and her friends on general education curriculum with mild modifications as necessary. Michaiah also qualified for speech and occupational therapy in the school for x amount of hours a week/month. These services started in preschool, where she attended for two years.
In addition, through her school ISD, we were referred to our local community health and were able to connect Michaiah with therapists who could provide her with Applied Behavior Analysis (ABA therapy). Michaiah’s issues haven’t been so much academics as much as the ASD has effected her behavior. The therapists have been working on many things including behavior modification. I can’t tell you how many times therapists have sat for hours instructing her therapy sessions! Michaiah is thriving and particularly loves the outdoor and craft activities they do together between 9-13 hours aweek in our home given the week and what all is going on.
Michaiah is now in 1st grade and is doing so well. Michaiah is able to talk in full sentences and have full conversations. She loves school so much she asks to even go to school on the weekends. I really think this is because…
Stay tuned for more….
Hey friends! I came across this and thought of some of you today. I wanted to pass something along to you to share that may or may not personally benefit you and others around you. How many of you are looking for the RIGHT business to build? How many of you are wanting to know the exact steps it would take in order to do this?
If this is you check this message out from Coach Dani Johnson:
Hey friends thinking of you today! This weeks topic is on trust. Trust is something that involves two people and is earned. It takes time to trust. With proper rapport building, your relationships are destined to prosper beyond your wildest dreams. Without trust, you really have nothing to go on. What relationship do you know of that needs some tweaking and improvements in your life?
Words from my long time mentor and coach, Dani Johnson:
Last post we were talking about the desires of your heart and that there is a reason for them being there. We covered the first thing you should know about that and here is the second half to that….
Secondly, it’s not necessarily about who you know or measurable your credentials are! There are plenty of people out there with credentials and degrees that they are not using for their intensive purposes that school was supposed to prepare them for! There are also plenty of people who have knowledge and skill in certain areas, but their people skill and their willingness to remain teachable is lacking.