Johnson’s Journies (Back Story Part 3)

I really believe our oldest daughter Michaiah is functioning so well and at school in her daily life because of the encouragement and the fostering of her development. Michaiah is receiving both speech and occupational therapy at the school. Though she is in a contained class, she still has general education curriculum along with sensory breaks and opportunities to use coping mechanisms that will allow her to better regulate her behavior. Michaiah must learn how to cope and self soothe if and when she were to ever integrate to a general education classroom. Though she does do this for the most part, it is not yet fully consistent at this time.

We also notice as parents, just like any other child, she is her own little person. A diagnosis or educational classification in this case, does not define who she is. She still has her likes and dislikes just like you or me. We do notice she is more motivated to work at something when it is a particular topic of interest. In her case, she is extremely motivated by both math and science! She also really enjoys art! We work on cultivating her gifts as parents. There are no limits that we place on her. We look to the potential of her overall full development, yet love on her where she is at. No matter how long it takes or the effort, the more we stick by Michaiah as parents, the more we see her desiring to learn and grow! Boy does she ever ask a TON of questions; especially lately! Everything is ‘why’ these days! Though it drives us crazy as parents, we are grateful she can even have conversation. Can you imagine how frustrating it would be for her not to verbally be in a position to communicate with us? It was not long ago that she had an extremely limited vocabulary! Having in-home therapy and advocating for her classroom program at school has made all the difference! Yes there are so many meetings and meetings for meetings. It can be draining, but when you see your child getting proper support and help in a way that you can truly see effective change like we have, it sure makes our hearts sing! We are overjoyed at all the progress she has made in the last few years of her little life!

We don’t know what the future holds as of yet. We were able to go through our local community health for an actual medical diagnosis. Had we not done this, we would be on quite a waiting list. Michaiah also has an acting neurologist who checks in on her and will be evaluated for genetic testing here in the month of March 2018. We will for sure keep you posted. Us parents sure are looking forward to some answers that only certain blood tests will ever reveal. It’s been a bit of a battle with the insurance approving it, but each step we take, we are getting closer to an answer. Knowing we may have some answers soon makes the fight worth it all. As parents, we know and have come to expect that this is a day by day journey. We do know one thing, our love for one another and the hope that each of us shares together. We did not ask for this, we did not expect this as parents that we would ever be faced with some of the decisions and choices we have had to make it. I can honestly say as a mother, there isn’t any regret that either of us have as her parents. We embrace it, all of it, the challenges, the tantrums, the laughter, the silliness, and the love! Both of our girls were the best thing that ever happened!!! Now lets get this journey started!!! <3

Clarification: Autism Awareness (Part 1)

Friends, I have talked with a few people recently. The more I share this with others, the more I realize there is misconception about something that I feel is very valid and noteworthy of clarification. You can choose to read this post or move on, but I would rather ensure that there is clear understanding rather than preconceived notions, assumptions, or lack of clarity for that matter. I am finally in a spot as a mom and a wife, that I am addressing this from the heart, so please only take this as my way saying, ‘I care and I want you to know’.

Our daughter went through a rigorous process of being evaluated over the course of the last 4 months. As bright, beautiful, intelligent, and spunky as we see our daughter, there were a few minor delays we noticed and we wanted to ensure that if this truly was the case, that our daughter receive the additional support and resources she needed so that she could thrive and be the best her possible! We didn’t want for her glass to be half full so to speak, we wanted to see her full potential come out and shine! As it turns out, Michaiah does fall on the Autism Spectrum.

Read more

Game Planning: The Vision In Visionary

How many times does another year pass you by and you still have things to do on your bucket list that did not get accomplished? If this is you, don’t beat yourself up or focus on what you didn’t get accomplished or done! Though it’s easier said and done, remember what you choose to have your mind focused on is what you become good at! Your goal is to achieve and accomplish goals, not to get stuck in a rut throwing yourself a pity party! There is still 4 months before the end of 2014 and it’s crunch time to make it count! Who says you can’t get your goals and desires accomplished this year in the next 4 months!?! Throw that negative thinking out the door, it’s time to get a new attitude and mindset!

Read more